A survey was developed and shared with organizations of persons with disabilities to understand how the Disability Data Advocacy Toolkit is being used and how it can be improved as an advocacy resource for organizations of persons with disabilities. The survey was made accessible in multiple languages including Arabic, English, French, Portuguese, Spanish, and a version in International Sign. This report provides the results of this survey and intends to demonstrate the needs of organizations of persons with disabilities in relation to data and their use for advocacy in disability rights.
The International Disability Alliance, the Stakeholder Group of Persons with Disabilities, and CBM Global Disability Inclusion carried out a survey with organizations of persons with disabilities (OPD) and other stakeholders to assess the use and gaps of our Disability Data Advocacy Toolkit. The survey further explored data gaps and gathered OPD-led citizen-generated data. Two reports emerged from this work: (1) Disability Data Advocacy Toolkit: lessons learned and (2) a compilation of case studies of data generated by organizations of persons with disabilities.